Patient Day at EAU23 puts patients first Patients and advocates get a hands-on role at the congress
Patient advocates, healthcare providers, patients and medical experts will come together during Patient Day at EAU23 in Milan in the interest of sharing knowledge and bettering the patient experience. EAU23 Patient Day aims to improve patient outcomes through education, shared decision-making and offering patient a platform to voice their perspectives and experiences. On the first day of the 38th Annual EAU Congress, the EAU Patient Office presents a dynamic programme with several roundtables and workshops to help advocates hone their skills, build their network and empower patients. The day kicks off with a special abstract session dedicated to a selected number of posters submitted by patients and patient advocates. The session seeks to highlight the needs of patients with urological disease; identify innovations in patient centred care, and to listen to patients’ voices as they report the outcomes and experiences of their treatment. Survivorship and chronic disability Surviving cancer treatment often comes with a cost. Many cancer survivors suffer from chronic health disability, and/or live with the consequences. Chronic urological diseases are among the most prevalent causes of chronic health disability and often co-exist with other chronic medical and psychiatric illnesses. During a special roundtable we will address the needs of patients suffering from chronic urological illness and strategies that empower them to manage their disability in partnership with healthcare professionals. Back to the basics An informed patient is an empowered patient. It is essential that patients and their advocates are well oriented with both the conditions and the jargon. The Roundtable “What is Cystitis” will feature Dr. J. Meijlink (NL), Chair of the International Painful Bladder Foundation (IPBF), Mrs Lynne Van Poelgeest, President of the World Federation of
practice and patient outcomes. To register for the Presentation Skills Workshop and the Clinical Leadership Development Workshop, send an email to: info.patientinformation@uroweb.org Meeting place for Patient Advocates Advocates can use the skills developed in these workshops and roundtables to build their network at the Patient Lounge, a premier networking area where Patient Day attendees can relax, regroup and discuss with their peers between sessions. The Patient Lounge is located in the exhibition area, Booth K36
highlighting the importance of patient engagement and their role in shared decision-making. Furthermore, patients will have representation throughout the full EAU23 scientific programme to highlight the patient’s role in improving outcomes. Therefore, we encourage delegates from all specialities to attend these patient-related sessions and expand their knowledge of the patient experience to better help their own practice. We would like to thank our principal supporter, Pfizer Oncology, and Astellas, for making Patient Day possible. Thanks to their unrestricted educational grant we are able to host this day at no cost to Patient Advocates.
Incontinence and Pelvic Problems (WFIPP), and urologist Prof. G. Bonkat (CH), discussing the basics like taxonomy and nomenclature, management plans, and the patient’s experienced pathway, to give patients confidence in navigating what can be a confusing and traumatic process. Giving patients the tools to understand their condition, as well as the associated nomenclature and processes, helps them to more effectively communicate with their physicians. Empowerment is the bedrock of the patient process Patient-physician communication is the bedrock of shared decision-making. It fosters an open dialogue between patients and physicians on the true status of the patient through every stage of their disease, from diagnosis to treatment to rehabilitation, which is essential to improving patient outcomes. At the Patient Day Roundtable on Patient-Physician Communication, experts like Dr. Rachel Giles (NL), CEO at the International Kidney Cancer Coalition (IKCC) and Ms Jacqueline Daly (IE), co-founder of East Galway & Midlands Cancer Support, will discuss the importance of patient engagement and best practice strategies to support a healthy dialogue. Building skills through hands-on workshops Patient Day at EAU23 further offers interactive and hands-on sessions for delegates to actively build their skillsets. We encourage patient advocates and nurses to join the Presentation Skills Workshops available throughout the Annual Congress. These workshops are led by Vivienne Parry (GB) of BBC Radio 4. Parry is a scientist and broadcaster who understands the importance of presentation skills in the medical field like no other. Patient Day’s Clinical Leadership Development Workshop aims to flip the classroom on the experts and have patients lead the discussion. Dr. M. Jewett (CA) leads the discussion to define patient engagement and how it can help clinical
This year at EAU23, Patient Day takes a priority position on the first day of the Congress,
EAU23 Patient Day Friday 10 March 09:00
Urological Patient Presentations
10:15
Roundtable discussion: Patient-Physician Communication
11:30
Roundtable discussion: Surviving Urological Cancer and Chronic disability from Urological Disease
13:30
Roundtable discussion: What is Cystitis?
Additional Sessions with Patient Representation Friday, 10 March
Saturday, 11 March Sunday, 12 March
Monday, 13 March 10:15 Clinical Leadership Development Workshop
08:00 Plenary Session: Challenges in Supportive Care in GU Cancers
08:00 Thematic Session: Locally advanced BCa:
1 0:15 Clinical Leadership Development Workshop
Misconception of informed consent
10.45 Special Session:
13:45 Plenary Session: Controversies on EAU
Meeting of the Young Academic Urologists (YAU)
Guidelines II: Testicular and bladder cancer and stones 1 3:45 Thematic Session: EAU Guideline session: Non-neurogenic female LUTS
New 2023 EAU Guidelines to be presented in Milan
As the world emerges from the disruption caused by the COVID 19 pandemic, this year has seen something of a return to normality for the European Association of Urology (EAU) Guidelines Office (GO). Following a successful EAU22 Congress in Amsterdam, Guidelines Panels tentatively began resuming physical meetings in order to update their texts and recommendations for 2023. The GO are delighted to announce that the 2023 edition of the EAU Guidelines (extended USB and Pocket) will be available for collection by all full EAU members at EAU23 from the EAU Booth in the exhibition hall. For the 2023 edition of the Guidelines, the majority of Panels have completed broad and comprehensive literature searches covering the full scope of their Guidelines. Additionally, a number of Guidelines have seen significant revision with the addition of new sections, or the completion of comprehensive updates of specific sections, resulting in new and updated recommendations. Highlights include: • a new section on management of genitourinary tuberculosis in the Urological Infections Guidelines; • a new section on penile size, abnormalities and dysmorphia in the Sexual and Reproductive Health Guidelines; • the Testicular Cancer Guidelines have seen a major revision and restructuring of the entire text; • the Muscle-invasive and Metastatic Bladder Cancer Guidelines have seen a major revision and restructuring of the section on Disease Management; and • the Non-neurogenic Male LUTS Guidelines have undergone a major revision in the section on Surgical Treatment. Last but definitely not least, we are also proud to announce the launch of the new joint EAU ASCO Penile Cancer Guidelines at EAU23 .
The IMAGINE project, aimed at measuring baseline adherence to EAU Guidelines recommendations across Europe, published its first set of results in
EAU Members: collect your EAU Pocket Guidelines
European Urology which would not have been possible without the support of the European National Urological Societies.
European Association of Urology Guidelines 2023 edition
EAU PO Box 30016
6803 AA Arnhem The Netherlands
T +31 (0)26 389 0680
guidelines@uroweb.org www.uroweb.org #eauguidelines
The PIONEER project entered its fifth year, publishing core outcome sets for prostate cancer patients and launching an online search tool for prostate cancer diagnostic and prognostic biomarkers. As well as hosting another successful studyathon. More institutions have been recruited to the cause, adding additional data sets to the project and joining that of the more than 3.5 million prostate cancer patients already available in the PIONEER platform. Similarly, the OPTIMA project, aimed at building a state-of-the-art Big Data analytic platform for the development of dynamic computer-interpretable guidelines for breast, lung & prostate cancer, continued to develop, establishing its governance, legal and ethical structures. Most importantly, OPTIMA has already secured access to electronic health records and registries covering over 200 million people across Europe, with a strategy to expand this number further.
at the EAU Booth K36
2023 edition
The distribution of the EAU Pocket Guidelines 2023 edition is sponsored by JANSSEN PHARMACEUTICA NV. EAU Members can collect a free copy during the congress in Milan (this does not apply to online only members) . First come, first served; limited copies available.
More information on ordering your copy of the EAU Guidelines can be found on the EAU website.
The yearly publication of the EAU Guidelines would not be possible without the unwavering support of the EAU Executive Committee and Management team, our highly valued Guidelines Panels and Associates, our Guidelines Committees, EAU membership and every user of the Guidelines globally. So, on behalf of the EAU Guidelines Office Board, thank you for your support and inspiration.
Disclaimer: No influence of JANSSEN PHARMACEUTICA NV was exerted on the scientific content of this publication.
Supported by Copyright © 2023 Janssen Pharmaceutica NV CP-367637 Approved 02.2023
We look forward to seeing you all in Milan!
European Urology Today
22
February/March 2023
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